Ever since I was diagnosed with colo-rectal cancer (CRC) early October 2008, I have been off from my active life - a stage of life where I had my feet in work, research, reading and play. The suffering has been so huge that my mind was not thinking anything else except the disease and the resulting pain. I did not have a chance even to sit and key-in my thoughts in my blogging world! It had been an old idea to capture all my experiences over this most painful suffering I have ever experienced in my life until now in the form of a written diary - either a printed form or an online resource. This blog serves and helps me in thinking myself out while going though this painful phase in my life.
To have a brief on the happenings over the past one year, here is a gist:
September 2008
- had severe anal pain and bleeding while passing stools
- consulted a local physician in Bangalore and took pain-killers and laxatives
- visited the family doctor in my hometown (Kadapa, A.P.) and had a diagnosis
- had a biopsy test in Chennai after my family doctor referred the case to a specialist
- diagnosed with colo-rectal cancer (CRC)
- decided on taking radiotherapy in VS Hospitals, Egmore, Chennai
- had a prognosis test in the form of KRAS, which showed that the tumour is gene-mutation negative
- did semen banking in Prashant Hospitals, Chennai, since it is the prerequisite and recommended step prior to taking radiotherapy
- first PET CT scan done to know the extent of the disease (it was at Stage IIIb)
- started radiotherapy in the mid-October with 5 daily doses of radiation for 6 weeks coupled with Oxaliplatin-based chemotherapy every week
- returned from Chennai to my hometown for taking rest for 2 months. (This rest was necessary after radiotherapy before further treatment).
- suffered with proctitis
- stayed at Kadapa, my hometown for post-radiotherapy rest
- returned to Bangalore to plan for a permanent colostomy surgery at Apollo Hospitals
- a PET CT scan confirmed the metastasis of the disease with its spread to liver and lung!
- Dr.Bapsy of Apollo Hospitals recommended Avastin-based chemotherapy along with 5FU and Oxaliplatin
- started chemotherapy at Apollo Hospitals, Bangalore
- continued chemotherapy at Apollo Hospitals, Bangalore
- had another PET CT scan after 3 cycles of chemotherapy. The scan this time shows improvement in the recession of the disease though not remarkable. Dr.Bapsy advised to continue the chemotherapy with the same protocol.
- had Salmonella bacteria infection and admitted to the Apollo Hospitals for a week. Survived with severe symptoms of diarrhea and fever
- chemotherapy stopped because of infections. (It is not advisable to have chemotherapy when body is infected)
- admitted to Apollo Hospitals due to an abscess in the rectal area
- got the abscess drained. Doctors, Vijay Kumar and Nawab Jaan of Apollo Hospitals advised at least a four-week rest before the surgery so that the drained abscess would heal.
- not convinced with the Apollo's team of doctors on the state and curability of the disease, took the opinion of Dr.K.S.Gopinath of Bangalore Institute of Oncology (BIO)
- had a temporary colostomy surgery by the team headed by Dr.K.S.Gopinath
- consulted Dr.Niti Narang, a medical oncologist with BIO on further chemotherapy
- a PET CT scan showed a progressive disease :-(
- started chemotherapy at BIO, the protocol including Cetuximab, Irinotecan and Xeloda
- started chemotherapy at BIO, the protocol including Cetuximab, Irinotecan and Xeloda
- admitted once to the BIO for cure of low neutrophils in the blood and got administered Neupogen
i am actually too numb to comment after reading this and feel what you have been through..and I dont know what to comment..i am not very religious and pray very little..but will definitely pray for your speedy recovery
ReplyDeleteThanks, man! Friends, family and IBM: without your support, I would not have been what I am now.
ReplyDeleteNice to have company
ReplyDeleteI am also blogging about my Colorectal carcinoma at drkumaresh.com/blog
How r u managing your colostomy?
@Dr.Kumaresh,
ReplyDeleteI had surgery for the diversionary colostomy temporarily in June 2009, and usually once in a week, I visit the hospital to get my stoma dressed and colostomy pouch replaced. (For more details, please see my blog post here: http://mygreenshoots.blogspot.com/2009/10/living-with-colostomy.html)
Regards,
Mohan.