Tuesday, November 23, 2010

Chest pain, fever, phew!

On the night before yesterday's, I had developed a slight pain in the lower part of the right chest. The pain was really so excruciating that it did not allow me to sleep almost half the night. So, yesterday, I had to rush to my doctor complaining about the pain and I realized that I was febrile when the thermometer showed well around 102 def F! So, after a few tests including an ECG, Dr.Niti told me the pain might be due to an infection and suggested me to take an anti-biotic along with Crocin, which is for controlling down the temperature.

Still this pain is troubling me in the nights, dragging me away from my usual sound sleeps! Of course, when I don't get sleep I will drive trains of fantasies - literary, humorous, etc - to keep myself engaged :) I hope I will get out of this ordeal sooner than later.

Thursday, November 18, 2010

Double blow with colostomy: A lesson!

For the first time in my experience with the colostomy in the past one-and-half years, yesterday I had a double blow: I had to replace the colostomy pouch twice on the same day! It was a horrible experience!

Ever since I had the colostomy surgery (for more details on colostomy, see my earlier post here) in mid-June, 2009, I have been replacing the pouch every week on an average. The system of colostomy comes with a pouch and a fitting flange; the flange is fitted around the stoma with a set of paper or dynaplast strips and the plastic pouch sits snugly on the flange. The feces/stool gets collected in the pouch and after usually a week, the flange begins to open and it needs a replacement since the plaster strips loosen themselves over time.

So, yesterday, it was my usual time for dressing and replacement of the system, and I promptly got it done at the BIO with my usual gang of sisters working on it. Strangely, by the time, I reached almost home, I realized that the flange this time already got opened and some feces had leaked through touching the surface of my abdomen! Fortunately, it was not too fluid to flow down and spoil my clothes! It was already 5:30 PM with continuous drizzle and I had to return to the hospital again for a fresh replacement! By the time I reached the hospital, it was well about an hour and when I reached back home it was almost 8 PM! It was drizzling even then and with my eyes bloated with continuous driving for more than 5 hours in the city's jammed roads and rainy airs, it was quite a trouble!
This had been one of the harrowing experiences for me surviving the disease!

On the positive note, this incident had taught me to acknowledge the presence of crisis and to react to it with a calm mind! (I realized the crisis moments and was tense in those moments when the feces was touching my abdomen and was in a hurry to visit the hospital for the second time. My reaction: acknowledge the crisis, de-stress the mind; get calm! I had tea served by my mother and I smiled! :)) The whole episode gave me lessons on handling a typical crisis situation and made some revelations on how react in those situations! :) Definitely, I have improved. I have arrived. :)


Friday, November 5, 2010

Favorable test numbers - a step closer to recovery

Consequent to the PET-CT scan in the third week of October last and the changed regimen of the chemo medicines suggested by my oncologist, Dr.Niti, I had my blood tested two days back. The objective was to see how the critical parameters such as white blood cell (WBC) count and the INR value so as to gauge the effectiveness of the treatment. And, the test results showed that all the critical parameters fall in their biologically permissive ranges! :) (For instance, the WBC count was 6.17 (permissible range: 4 - 11) and the INR is 2.37 (permissible range: 2.0 - 3.0).)

I am particularly happy with two things: (1) good and favorable blood test results, and (2) the responsiveness and sensitivity with which my doctor reacted to these results. Immediately after getting my test numbers known orally from Deepika Sister, I had emailed the results to my doctor who in her natural way replied back saying that "All looks well!". It is good on one hand to have positive news and to have a responsive doctor on the other, who sits on top of her case with interest and responds with empathy! Thank you, doc! :)

Wednesday, April 21, 2010

Chemo-24 yesterday - Bouts of depression and renewed vigour

...I would not comprehend the meaning of loneliness since she was always present with me. When I was emotionally down one day, when the entire world around me seemed to divide me into innumerable pieces, I locked myself into a deep thick shell of mine. I would not allow anyone to touch that shell of mine and the shell would not be broken by any one else except its creator. It had no doors, no windows or any other apertures for any one else to peep into. It was the sole creation of mine with stones of my silence, walls of my intense thoughts and layers of serious introspection. Nonetheless, she suddenly could make her way into my own shell! I shouted at her, “How on this shell could you make an entry? It is mine and no one else’.” She replied with a coy smile, “I have no form. I have no body. I have no limits. Reasoning cannot touch me and so does your limited mind. No one can stop this ever-turning wheel of destiny that is created by me. You are but a part of that whole and not the whole. The world needs the creators of the shells like this, but not the shells; for, these shells would add to the disorder of the cosmos and thus would never be the liking of the God. You think you are trapped in this shell cutting down all the communication with the outside world. But then how do you make yourself cut-off from a world that is inside you? Don’t you see that world of yours that is slow in its working compared to its outer counterpart? Don’t you see the world inside you that is so simple in its awesome complexity? Don’t you see the world here with you that is incomplete without any connection with the outside entities? You think your own world is too complex to live. But anything seemingly simple should be obviously complex inside. No one until now could live only with this inside world. Because it simply cannot exist in vacuum. If you make yourself close to your inner world then it does mean that you acknowledge its presence, which is absolutely essential for its existence. If you think that you cannot face the realities of the outside world, then it is preposterous. For, then only you can appreciate the value of your inner world more. Do you think that darkness simply exists because it should exist as per the laws of nature? No, it exists to elevate the importance of the light. Do you think that bad things simply exist because they should exist as per the moral laws? No, they exist to make you appreciate the good things. The particle and its anti form should co-exist so that the Universe would stay in harmony. And this does not mean that you should take an abominable attitude towards one for the other. You might switch the minds between them but ultimately you should learn that you should live midway between them. This is the perspective that you need to ingrain in your mind.”

That was the time I decided to break the shell and never did I have a chance to break it again.

Once I asked her,"Why do I always feel disgruntled whenever I think with my heart and feel with my mind rather than think with my mind and feel with heart?" She simply replied, “Because you just feel more and think less!" That crisp combination of words made me think again on the meaning of life. The moments of loneliness, matters of deprivation and minutes of vapidity were sprinkled in this life as though they were natural ingredients of that. She said, “It all lies in your state of mind!" My state of mind had been the same over its period of existence, and I wish it would be the same for ever; for, that was the state that made me, defined me and created me; that was the state that would take my form into a limitless disposition of self-brooding; that was the state that makes me what I have been...

[An excerpt from my essay titled Living Lonely, 2003]

***

The state of experience from last week's hospitalization was still fresh in my mind. With a little anxiety, I reached the hospital, thinking about the blood counts and the day's chemo infusion experiences. The hospital lobby was as usual crowded and the staff was in day's brisk business. When would be this world free from cancer?

***

The day's blood test results showed an improvement from the last week's numbers, though not a good improvement. The WBC count was just enough to go ahead and have Cetuximab. The rashes on my face were becoming prominent because of this drug.

***

I got the worst moments of despondency during the chemo suffusion after really a long time. Unknown anxiety and apprehensive thoughts persisted for a long time until I again started infusing some positive thoughts into my mind. I visualized the kind of world that I wanted to live in - a small but beautiful world. The world in which I - I alone - live singing, dancing, writing, reading and just looking at the lush greenery which is the lone companion to me. Free from worries and living with my own self. Beauty needs to be felt from within before the senses are drawn to the outside horizons. The wonderful world is within. And I started loving it.

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood
And looked down one as far as I could
To where it bent in the undergrowth;
Then took the other, just as fair,
And having perhaps the better claim,
Because it was grassy and wanted wear;
Though as for that passing there
Had worn them really about the same,
And both that morning equally lay
In leaves no step had trodden black.
Oh, I kept the first for another day!
Yet knowing how way leads to way,
I doubted if I should ever come back.
Somewhere ages and ages hence:
Two roads diverged in a wood, and I -
I took the one less traveled by,
And that has made all the difference.

- From the poem, The Road Not Taken, Robert Frost

Wednesday, April 14, 2010

Chemo-23 - A saga of low blood counts!

Last Monday, when the usual day's blood test reports came out, I was shocked to see the WBC count! It was 0.8! This was the lowest ever number recorded in my entire history of the disease. I was eager to meet my doctor and want to hear from her on the reasons and her thoughts. And, when I finally met her, I could only see a modest surprise in her face and got no particular reason from her for the sudden and steep drop in the blood count! (See the attached chart for a perspective!)

She had no other option than to get me admitted into the hospital and to take me through the anti-biotic regimen along with a blood improvement medication through Neupogen shots for at least two days, before the regular chemo is administered.

It was thus another ordeal - physical and mental - for me to go through the entire corrective mechanism for the blood improvement and then yesterday (Tuesday), when the blood count improved to 1.47, the regular chemo drug suffused through my body, I got relieved!

***

The low blood counts in the body usually induces in me lots of weird feelings - dizziness, weakness, loss of appetite, feverishness, body aches, etc. - which restrict my mobility and thus make me feel really sick! :( I always tell myself whenever this happens: "There cannot be a low further lower than this! So, wake up!" And, I try to visualize the beauty in this world - all the beautiful things, feelings, thoughts - that really make me smile and help me ignore the powerful fact that I carry one of the most deadliest diseases in this world! After all, I will have a life, and I want to live that fully. With bloody vengeance!

***

The two-day pre-monsoon showers in Bangalore were pretty wonderful to feel. A visual treat. I watched out through the window with the tiny drops of water lazily falling off on the surface as though they were reluctant to leave the source. The moist pane on the other side beckons me to scribble on it something. Some doodling. The pigeons settled on the window's seat-board to protect themselves from the drizzle, occasionally poking the glass with their beaks as though they wanted to connect with me! I watched the drizzle, doodled and visualized the images for the beautiful melody on my radio. Flowers in the distance were dancing to the tune of the rains! Trees did not stop waving too! Where flowers bloom so does hope! What a dazzling beauty Mother Nature manifests herself through.

As I ventured to the wood,
I stopped to draw on dewy air; let
Droplets shimmer in my hair, that
Rested on my tranquil head – as
If a sense of cosy bed.

As I ventured to the wood,
A gesturing cuckoo perched above,
And then in song with cooing dove,
‘You're welcome’, bade he, ’enter please –
To roam our land with gentle breeze.’

As I ventured to the wood,
A dazzling flower waved her face
In blazing show of dance and chase, and
Reddened bright in shade of dawn, she
Flirted like a prancing fawn.

As I ventured to the wood,
A butterfly had graced my arm,
And knowing I bid him no harm, he
Splayed for me hypnotic wing in
Colors for to urge me sing!

As I ventured to the wood,
The radiant sun shone down on me.
He flushed and beamed: ‘I say to thee,
You bless your land; be filled with pride, and
Cherish e’er yon countryside! ’

[Adapted from: Succumbed to Thinking by Mark Raymond Slaughter]